The Online Community for Parents. Connecting Families Living with Congenital Gender Variations in Children or their Parents.
Turner's Syndrome
My daughter has xoxy mosaic Turner's Syndrome. You may ask what does this mean? I have been asking myself the same question since she was diagnosed shortly after birth one year ago.
We know that it means she has some physical signs of Turner's Syndrome but everything else about her condition waits to be seen. Will she have short stature?
Will she have learning or socialization difficulties?Will she need hormone therapy?
Will she struggle with gender identity?
Will she be a regular, happy kid?
I have searched for a place I can feel comfortable talking with other parents about these issues. Places like this are few and far between. With ParentsInX we have the opportunity to create a community for parents to share similar experiences and the joys of parenthood.
Mamaniq
Klinefelter's Syndrome
Dr. Harry Klinefelter discovered that a group of men with enlarged breast have a commonality; their chromosome makeup is typically xxy. Some experience more symptoms of the xxy condition and some less.
More than 60 years after the initial discovery, parents are talking more about their children and Doctors are more aware of how to treat patients of Klinefelter’s syndrome. Still, more research is needed.
ParentsInX is a site where Parents of Klinefelter’s Syndrome children can discuss the concerns and exchange notes on everything including medications available, schooling, socialisation and many more topics in a comfortable home setting.
Please join us in commemorating Dr. Henry’s discovery as this year the second annual awareness campaign week is from March 16th to the 22nd with various sites participating in the event including sites such as this and those in www.KlinefelterSyndromeAware.com.
Andre
Handbook for parents written by parents
Thu May 22, 2008 11:14 am by Andre
This booklet was created for parents of intersexed children in order to help them better understand the unknown world of intersexuality and to help them live with their child’s difference so that they can better accept their child. (English translation will be published soon.)
CHAPTER 1 : The shock of the announcement
CHAPTER 2 : Understanding and information
CHAPTER 3 : Acceptan...
Some of us hear the above title and immediately think this is only for Intersex and “other” conditions.
Not so. Let’s break the wording down.
“Congenital” basically means of what we were born with. When I looked up congenital in the Word documents’ thesaurus, they describe it as present at birth, innate, inborn, inherited and hereditary. There is all kinds of Congenital ...
When GendersInX was approximately a year old under the new server, I had started to think about creating a new site just for parents of children with a Congenital Gender Variation. This would include parents who are or their children who are of 5 Alpha Reductase, Congenital Adrenal Hyperplasia, Androgen Insensitivity Syndrome, Klinefelter’s Syndrome and Turner’s Syndrome.
It is with great pleasure to welcome you to this site especially for Parents.
What makes this site different from others is that we have not only Parents with children who have a condition but also Parents with a condition. Also, you will find different conditions that are known throughout the Internet, each of them have a resource person in which you can ask quest...
To link with ParentsInX, please copy the text below to a link on your site in an area that is visible to the public. We would prefer if you would put this link into the Parent or child section of your site. If you would like a reciprocal link, please contact us at Andre@ParentsInX.org .
Thu May 22, 2008 11:14 am by Andre
