The Online Community for Parents. Connecting Families Living with Congenital Gender Variations in Children or their Parents.
Turner's Syndrome
My daughter has xoxy mosaic Turner's Syndrome. You may ask what does this mean? I have been asking myself the same question since she was diagnosed shortly after birth one year ago.
We know that it means she has some physical signs of Turner's Syndrome but everything else about her condition waits to be seen. Will she have short stature?
Will she have learning or socialization difficulties?Will she need hormone therapy?
Will she struggle with gender identity?
Will she be a regular, happy kid?
I have searched for a place I can feel comfortable talking with other parents about these issues. Places like this are few and far between. With ParentsInX we have the opportunity to create a community for parents to share similar experiences and the joys of parenthood.
Mamaniq
Klinefelter's Syndrome
Dr. Harry Klinefelter discovered that a group of men with enlarged breast have a commonality; their chromosome makeup is typically xxy. Some experience more symptoms of the xxy condition and some less.
More than 60 years after the initial discovery, parents are talking more about their children and Doctors are more aware of how to treat patients of Klinefelter’s syndrome. Still, more research is needed.
ParentsInX is a site where Parents of Klinefelter’s Syndrome children can discuss the concerns and exchange notes on everything including medications available, schooling, socialisation and many more topics in a comfortable home setting.
Please join us in commemorating Dr. Henry’s discovery as this year the second annual awareness campaign week is from March 16th to the 22nd with various sites participating in the event including sites such as this and those in www.KlinefelterSyndromeAware.com.
Andre
Welcome to ParentsInX.org
Sun Dec 16, 2007 11:15 am by Andre
Hello,
It is with great pleasure to welcome you to this site especially for Parents.
What makes this site different from others is that we have not only Parents with children who have a condition but also Parents with a condition. Also, you will find different conditions that are known throughout the Internet, each of them have a resource person in which you can ask questions pertaining to the specific condition. These resource people have the conditions mentioned themselves.
In other areas here, we can discuss the various aspects of us being parents, the day to day things and what your child or children go through at home or at school. It's nice to discuss those subjects with other parents and see that we are not alone in our trials and tribulations.
You may find that navigating this site will come easy but everything new is something to get used to. Should you be in need of any assistance, you can contact Mamaniq, Bobas56 or myself, Andre. We have a suggestion forum as well if there is something you would like to see that isn't here already.
In The Kitchen table section, we can relax, have a virtual cup of coffee and discuss whatever we feel we want to. Picture it as an International neighborhood, all coming together and "kibitzing" over the table with whatever to drink in our hands, maybe we will throw in some munchies.
If you are concerned of anything here, please let me know and I will address it immediately along with my team of moderators.
To link with ParentsInX, please copy the text below to a link on your site in an area that is visible to the public. We would prefer if you would put this link into the Parent or child section of your site. If you would like a reciprocal link, please contact us at Andre@ParentsInX.org .
Sun Dec 16, 2007 11:15 am by Andre
