The Online Community for Parents. Connecting Families Living with Congenital Gender Variations in Children or their Parents.
Turner's Syndrome
My daughter has xoxy mosaic Turner's Syndrome. You may ask what does this mean? I have been asking myself the same question since she was diagnosed shortly after birth one year ago.
We know that it means she has some physical signs of Turner's Syndrome but everything else about her condition waits to be seen. Will she have short stature?
Will she have learning or socialization difficulties?Will she need hormone therapy?
Will she struggle with gender identity?
Will she be a regular, happy kid?
I have searched for a place I can feel comfortable talking with other parents about these issues. Places like this are few and far between. With ParentsInX we have the opportunity to create a community for parents to share similar experiences and the joys of parenthood.
Mamaniq
Klinefelter's Syndrome
Dr. Harry Klinefelter discovered that a group of men with enlarged breast have a commonality; their chromosome makeup is typically xxy. Some experience more symptoms of the xxy condition and some less.
More than 60 years after the initial discovery, parents are talking more about their children and Doctors are more aware of how to treat patients of Klinefelter’s syndrome. Still, more research is needed.
ParentsInX is a site where Parents of Klinefelter’s Syndrome children can discuss the concerns and exchange notes on everything including medications available, schooling, socialisation and many more topics in a comfortable home setting.
Please join us in commemorating Dr. Henry’s discovery as this year the second annual awareness campaign week is from March 16th to the 22nd with various sites participating in the event including sites such as this and those in www.KlinefelterSyndromeAware.com.
Andre
Handbook for parents written by parents
Thu May 22, 2008 11:14 am by Andre
This booklet was created for parents of intersexed children in order to help them better understand the unknown world of intersexuality and to help them live with their child’s difference so that they can better accept their child. (English translation will be published soon.)
CHAPTER 1 : The shock of the announcement
CHAPTER 2 : Understanding and information
CHAPTER 3 : Acceptance
CHAPTER 4 : Love is not ambiguous
CHAPTER 5 : Choice – or forming an identity
CHAPTER 6 : Raising and intersex child
CHAPTER 7 : « How to tell your child »
OII thanks the mothers who wrote this booklet which is a first. Their courage and their frankness will help many other parents and society in general to accept intersexed children.
Available as PDF download : http://www.intersexualite.org/Pour_les_parents.pdf
Text only : http://www.intersexualite.org/Parents.html#anchor_14
To link with ParentsInX, please copy the text below to a link on your site in an area that is visible to the public. We would prefer if you would put this link into the Parent or child section of your site. If you would like a reciprocal link, please contact us at Andre@ParentsInX.org .
Thu May 22, 2008 11:14 am by Andre
